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Title:

Data-driven sudden cardiac arrest research in Europe: Experts' perspectives on ethical challenges and governance strategies.

Document type:
Journal Article; Review
Author(s):
Bak, Marieke A R; Vroonland, Jelle C H; Blom, Marieke T; Damjanovic, Domagoj; Willems, Dick L; Tan, Hanno L; Corrette Ploem, M
Abstract:
BACKGROUND: Observational studies using large-scale databases and biobanks help improve prevention and treatment of sudden cardiac arrest (SCA) but the lack of guidance on data protection issues in this setting may harm patients' rights and the research enterprise itself. This qualitative study explored the ethical aspects of observational SCA research, as well as solutions. METHODS: European experts in SCA research, medical ethics and health law reflected on this topic through semi-structured i...     »
Journal title abbreviation:
Resusc Plus
Year:
2023
Journal volume:
15
Fulltext / DOI:
doi:10.1016/j.resplu.2023.100414
Pubmed ID:
http://view.ncbi.nlm.nih.gov/pubmed/37363125
TUM Institution:
Institut für Geschichte und Ethik der Medizin (Prof. Buyx)
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