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Titel:

Data-driven sudden cardiac arrest research in Europe: Experts' perspectives on ethical challenges and governance strategies.

Dokumenttyp:
Journal Article; Review
Autor(en):
Bak, Marieke A R; Vroonland, Jelle C H; Blom, Marieke T; Damjanovic, Domagoj; Willems, Dick L; Tan, Hanno L; Corrette Ploem, M
Abstract:
BACKGROUND: Observational studies using large-scale databases and biobanks help improve prevention and treatment of sudden cardiac arrest (SCA) but the lack of guidance on data protection issues in this setting may harm patients' rights and the research enterprise itself. This qualitative study explored the ethical aspects of observational SCA research, as well as solutions. METHODS: European experts in SCA research, medical ethics and health law reflected on this topic through semi-structured i...     »
Zeitschriftentitel:
Resusc Plus
Jahr:
2023
Band / Volume:
15
Volltext / DOI:
doi:10.1016/j.resplu.2023.100414
PubMed:
http://view.ncbi.nlm.nih.gov/pubmed/37363125
TUM Einrichtung:
Institut für Geschichte und Ethik der Medizin (Prof. Buyx)
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