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Titel:

Towards trust-based governance of health data research.

Dokumenttyp:
Journal Article
Autor(en):
Bak, Marieke A R; Ploem, M Corrette; Tan, Hanno L; Blom, M T; Willems, Dick L
Abstract:
Developments in medical big data analytics may bring societal benefits but are also challenging privacy and other ethical values. At the same time, an overly restrictive data protection regime can form a serious threat to valuable observational studies. Discussions about whether data privacy or data solidarity should be the foundational value of research policies, have remained unresolved. We add to this debate with an empirically informed ethical analysis. First, experiences with the implementa...     »
Zeitschriftentitel:
Med Health Care Philos
Jahr:
2023
Band / Volume:
26
Heft / Issue:
2
Seitenangaben Beitrag:
185-200
Volltext / DOI:
doi:10.1007/s11019-022-10134-8
PubMed:
http://view.ncbi.nlm.nih.gov/pubmed/36633724
Print-ISSN:
1386-7423
TUM Einrichtung:
Institut für Geschichte und Ethik der Medizin (Prof. Buyx)
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