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Title:

Broad consent for health care-embedded biobanking: understanding and reasons to donate in a large patient sample.

Document type:
Article; Journal Article; Research Support, Non-U.S. Gov't
Author(s):
Richter, Gesine; Krawczak, Michael; Lieb, Wolfgang; Wolff, Lena; Schreiber, Stefan; Buyx, Alena
Abstract:
PurposeTo facilitate ethically acceptable and practically successful health care-embedded biobanking, the attitudes and understanding of patients and their motivation to participate need to be explored.MethodsA questionnaire study was conducted among 760 outpatients of a northern German university hospital to assess their awareness of, and motivation for giving broad consent to health care-embedded biobanking, also addressing the issue of feedback on individual-level research findings.ResultsThe...     »
Journal title abbreviation:
Genet Med
Year:
2018
Journal volume:
20
Journal issue:
1
Pages contribution:
76-82
Fulltext / DOI:
doi:10.1038/gim.2017.82
Pubmed ID:
http://view.ncbi.nlm.nih.gov/pubmed/28640237
Print-ISSN:
1098-3600
TUM Institution:
Institut für Geschichte, Theorie und Ethik der Medizin
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