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Title:

Contextual Exceptionalism After Death: An Information Ethics Approach to Post-Mortem Privacy in Health Data Research.

Document type:
Journal Article; Research Support, Non-U.S. Gov't
Author(s):
Bak, Marieke A R; Willems, Dick L
Abstract:
In this article, we use the theory of Information Ethics to argue that deceased people have a prima facie moral right to privacy in the context of health data research, and that this should be reflected in regulation and guidelines. After death, people are no longer biological subjects but continue to exist as informational entities which can still be harmed/damaged. We find that while the instrumental value of recognising post-mortem privacy lies in the preservation of the social contract for h...     »
Journal title abbreviation:
Sci Eng Ethics
Year:
2022
Journal volume:
28
Journal issue:
4
Fulltext / DOI:
doi:10.1007/s11948-022-00387-0
Pubmed ID:
http://view.ncbi.nlm.nih.gov/pubmed/35922650
Print-ISSN:
1353-3452
TUM Institution:
Institut für Geschichte und Ethik der Medizin
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