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Titel:

Secondary research use of personal medical data: attitudes from patient and population surveys in The Netherlands and Germany.

Dokumenttyp:
Article; Journal Article
Autor(en):
Richter, Gesine; Borzikowsky, Christoph; Lesch, Wiebke; Semler, Sebastian C; Bunnik, Eline M; Buyx, Alena; Krawczak, Michael
Abstract:
Making routine clinical-care-data available for medical research requires adequate consent to legitimize use and exchange. While, public interest in supporting medical research is increasing, individuals often find it difficult to actively enable researchers to access their data. In addition to broad consent, the idea of (consent-free) data donation has been brought into play as another way to legitimize secondary research use of medial data. However, flanking the implementation of broad consent...     »
Zeitschriftentitel:
Eur J Hum Genet
Jahr:
2021
Band / Volume:
29
Heft / Issue:
3
Seitenangaben Beitrag:
495-502
Volltext / DOI:
doi:10.1038/s41431-020-00735-3
PubMed:
http://view.ncbi.nlm.nih.gov/pubmed/33005018
Print-ISSN:
1018-4813
TUM Einrichtung:
Institut für Geschichte, Theorie und Ethik der Medizin
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