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Title:

A Trust-Based Pact in Research Biobanks. From Theory to Practice.

Document type:
Journal Article; Research Support, Non-U.S. Gov't; Article
Author(s):
Sanchini, Virginia; Bonizzi, Giuseppina; Disalvatore, Davide; Monturano, Massimo; Pece, Salvatore; Viale, Giuseppe; Di Fiore, Pier Paolo; Boniolo, Giovanni
Abstract:
Traditional Informed Consent is becoming increasingly inadequate, especially in the context of research biobanks. How much information is needed by patients for their consent to be truly informed? How does the quality of the information they receive match up to the quality of the information they ought to receive? How can information be conveyed fairly about future, non-predictable lines of research? To circumvent these difficulties, some scholars have proposed that current consent guidelines sh...     »
Journal title abbreviation:
Bioethics
Year:
2016
Journal volume:
30
Journal issue:
4
Pages contribution:
260-71
Language:
eng
Fulltext / DOI:
doi:10.1111/bioe.12184
Pubmed ID:
http://view.ncbi.nlm.nih.gov/pubmed/26307361
Print-ISSN:
0269-9702
TUM Institution:
Institut für Geschichte, Theorie und Ethik der Medizin
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