Resilience in children with congenital heart disease: a comparative study with health counterparts.

Köble, Katharina; Willinger, Laura; Brudy, Leon; Oberhoffer-Fritz, Renate; Ewert, Peter; Müller, Jan

doi:10.1136/archdischild-2023-325605

journal article

Title:: Resilience in children with congenital heart disease: a comparative study with health counterparts.
Document type:: Article; Journal Article; Research Support, Non-U.S. Gov't
Author(s):: Köble, Katharina; Willinger, Laura; Brudy, Leon; Oberhoffer-Fritz, Renate; Ewert, Peter; Müller, Jan
Abstract:: OBJECTIVE: Resilience is a complex, yet rather unexplored topic in patients with congenital heart disease (CHD). The goal of this study was to assess and compare resilience in children with CHD with healthy controls during the COVID-19 pandemic. DESIGN AND PATIENTS: From June 2020 to June 2021, 124 children with various CHDs (14.6±2.1 years, 49 girls) and 124 matched healthy controls (14.8±2.0 years, 49 girls) completed the Resilience Scale-11 short version. RESULTS: Resilience was significantly reduced in children with CHD compared with healthy controls (CHD: 59.0±10.0 vs healthy controls: 64.4±6.5, p<0.001). That reduction was prominent in all CHD subgroups except those with left heart obstruction (aortic stenosis and coarctation of the aorta) and patients with transposition of the great arteries. Complex CHD had the lowest resilience of 57.6±8.4 (p<0.001) after adjusting for age and sex according to group differences. There was no difference between native CHD and CHD with open-heart surgery (native: 59.5±12.2 vs surgery: 58.8±9.3, p=0.758). CONCLUSIONS: Resilience was reduced in children and adolescents with CHD compared with healthy peers during the COVID-19 pandemic. Children with complex severity appeared to be particularly affected. These findings emphasise continued efforts to provide a holistic and multidisciplinary approach in medical aftercare of these patients and their families.
Journal title abbreviation:: Arch Dis Child
Year:: 2023
Journal volume:: 108
Journal issue:: 11
Pages contribution:: 935-939
Fulltext / DOI:: doi:10.1136/archdischild-2023-325605
Pubmed ID:: http://view.ncbi.nlm.nih.gov/pubmed/37463735
Print-ISSN:: 0003-9888
TUM Institution:: Klinik für Kinderkardiologie und angeborene Herzfehler (DHM) (Prof. Ewert)
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mediaTUM Gesamtbestand Einrichtungen Schools TUM School of Medicine and Health Departments Clinical Medicine Lehr- und Forschungskooperationen mit den Kliniken und Instituten am Deutschen Herzzentrum Klinik für Kinderkardiologie und angeborene Herzfehler (DHM) (Prof. Ewert)2023