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Titel:

Towards a comprehensive and interoperable representation of consent-based data usage permissions in the German medical informatics initiative.

Dokumenttyp:
Article; Journal Article; Research Support, Non-U.S. Gov't
Autor(en):
Bild, Raffael; Bialke, Martin; Buckow, Karoline; Ganslandt, Thomas; Ihrig, Kristina; Jahns, Roland; Merzweiler, Angela; Roschka, Sybille; Schreiweis, Björn; Stäubert, Sebastian; Zenker, Sven; Prasser, Fabian
Abstract:
BACKGROUND: The aim of the German Medical Informatics Initiative is to establish a national infrastructure for integrating and sharing health data. To this, Data Integration Centers are set up at university medical centers, which address data harmonization, information security and data protection. To capture patient consent, a common informed consent template has been developed. It consists of different modules addressing permissions for using data and biosamples. On the technical level, a comm...     »
Zeitschriftentitel:
BMC Med Inform Decis Mak
Jahr:
2020
Band / Volume:
20
Heft / Issue:
1
Volltext / DOI:
doi:10.1186/s12911-020-01138-6
PubMed:
http://view.ncbi.nlm.nih.gov/pubmed/32503529
Print-ISSN:
1472-6947
TUM Einrichtung:
Institut für Medizinische Statistik und Epidemiologie
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