User: Guest  Login
Document type:
journal article 
Author(s):
Brandizi, Marco; Melnichuk, Olga; Bild, Raffael; Kohlmayer, Florian; Rodriguez-Castro, Benedicto; Spengler, Helmut; Kuhn, Klaus A; Kuchinke, Wolfgang; Ohmann, Christian; Mustonen, Timo; Linden, Mikael; Nyrönen, Tommi; Lappalainen, Ilkka; Brazma, Alvis; Sarkans, Ugis 
Title:
Orchestrating differential data access for translational research: a pilot implementation. 
Abstract:
Translational researchers need robust IT solutions to access a range of data types, varying from public data sets to pseudonymised patient information with restricted access, provided on a case by case basis. The reason for this complication is that managing access policies to sensitive human data must consider issues of data confidentiality, identifiability, extent of consent, and data usage agreements. All these ethical, social and legal aspects must be incorporated into a differential managem...    »
 
Journal title abbreviation:
BMC Med Inform Decis Mak 
Year:
2017 
Journal volume:
17 
Journal issue:
Pages contribution:
30 
Language:
eng 
TUM Institution:
Institut für Medizinische Informatik, Statistik und Epidemiologie