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- Title:
Health-Related Quality of Life in Spinal Muscular Atrophy Patients and Their Caregivers_A Prospective, Cross-Sectional, Multi-Center Analysis
- Document type:
- Zeitschriftenaufsatz
- Author(s):
- Wohnrade, Camilla ; Velling, Ann-Kathrin ; Mix, Lucas ; Wurster, Claudia D. ; Cordts, Isabell ; Stolte, Benjamin ; Zeller, Daniel ; Uzelac, Zeljko ; Platen, Sophia ; Hagenacker, Tim ; Deschauer, Marcus ; Lingor, Paul ; Ludolph, Albert C. ; Lulé, Dorothée ; Petri, Susanne ; Osmanovic, Alma ; Schreiber-Katz, Olivia
- Keywords:
- Article ; caregiver ; caregiver burden ; mental health ; quality of life ; spinal muscular atrophy ; patient reported outcome measures
- Journal title:
- Brain Sciences
- Year:
- 2023
- Journal volume:
- 13
- Journal issue:
- 1
- Fulltext / DOI:
- doi:10.3390/brainsci13010110
- Publisher:
- MDPI
- E-ISSN:
- 2076-3425
- Date of publication:
- 07.01.2023
- CC license:
- by, https://creativecommons.org/licenses/by/4.0
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