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Document type:
Article; Journal Article 
Author(s):
Richter, Gesine; Borzikowsky, Christoph; Lesch, Wiebke; Semler, Sebastian C; Bunnik, Eline M; Buyx, Alena; Krawczak, Michael 
Title:
Secondary research use of personal medical data: attitudes from patient and population surveys in The Netherlands and Germany. 
Abstract:
Making routine clinical-care-data available for medical research requires adequate consent to legitimize use and exchange. While, public interest in supporting medical research is increasing, individuals often find it difficult to actively enable researchers to access their data. In addition to broad consent, the idea of (consent-free) data donation has been brought into play as another way to legitimize secondary research use of medial data. However, flanking the implementation of broad consent...    »
 
Journal title abbreviation:
Eur J Hum Genet 
Year:
2021 
Journal volume:
29 
Journal issue:
Pages contribution:
495-502 
Print-ISSN:
1018-4813 
TUM Institution:
Institut für Geschichte, Theorie und Ethik der Medizin