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Document type:
journal article 
Author(s):
Sanchini, Virginia; Bonizzi, Giuseppina; Disalvatore, Davide; Monturano, Massimo; Pece, Salvatore; Viale, Giuseppe; Di Fiore, Pier Paolo; Boniolo, Giovanni 
Title:
A Trust-Based Pact in Research Biobanks. From Theory to Practice. 
Abstract:
Traditional Informed Consent is becoming increasingly inadequate, especially in the context of research biobanks. How much information is needed by patients for their consent to be truly informed? How does the quality of the information they receive match up to the quality of the information they ought to receive? How can information be conveyed fairly about future, non-predictable lines of research? To circumvent these difficulties, some scholars have proposed that current consent guidelines sh...    »
 
Journal title abbreviation:
Bioethics 
Year:
2016 
Journal volume:
30 
Journal issue:
Pages contribution:
260-71 
Language:
eng 
Fulltext / DOI:
Print-ISSN:
0269-9702 
TUM Institution:
Institut für Geschichte und Ethik der Medizin